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Undiagnosed Diseases Program

Client: Genetic Services WA

Office of Population Health Genomics

The Centre for Transformative Work Design is currently partnered with Genetic Services WA and the Office of Population Health Genomics (OPHG) to study the Western Australian Undiagnosed Diseases Program (UDP-WA), an interdisciplinary ‘expert panel’ which reviews the cases of chronically undiagnosed patients.

 

The aim of the current project is to understand the cognitive, motivational, and social-psychological factors that contribute to – or inhibit – the success and sustainability of the program. Data collection is ongoing and includes interviews with the UDP-WA expert clinicians, short written surveys, and systematic observation of the monthly expert panel meetings.

 

The ultimate goal of the project is to develop evidence-based recommendations on how to further enhance and sustain the success of the UDP-WA, specifically by improving clinician engagement and communication in the expert panel meetings. These recommendations will be developed in consultation with the OPHG and UDP-WA management team, and will include follow-up evaluations.

Industry outcomes

The proposed immediate outcome of the project is a comprehensive, multi-level framework of the UDP-WA that describes the factors that contribute to the current program’s success.

Dissemination of these findings will provide significant support for the further globalisation and sustainability of UDPs internationally.

Research Team

Sharon Parker

Florian Klonek

Georgia Hay

The Future of Work Institute (FoWI) promotes productive and meaningful work as essential foundations of a healthy economy and society.

FoWI’s researchers focus on how people contribute to and benefit from new knowledge and practices, and their mission is to support thriving people and organisations in the digital age.

The Future of Work Institute acknowledges the Wadjuk Nyungar people as the traditional owners of the land on which the Institute is situated.

Contact Us

Location: 

Future of Work Institute

Curtin Graduate School of Business 

78 Murray Street, Perth WA 6000


Telephone: +61 8 9266 4668


Email: fowi@curtin.edu.au

Links
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